| MEJ |
| THROMBOCYTHAEMIA |
| YUKU FORUM |
| SURVEY |
| A survey of
the Yuku Thrombocythemia Discussion Group - Please contact markejon, if you
wish to participate |
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| Survey Start
Date |
01-Apr-09 |
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| Date These
Results Published |
12-Aug-12 |
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| MembersParticipating |
20 |
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| Still Active |
20 |
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| % Validity |
100.0% |
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| CONTENTS -
Scroll down to view |
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| About You |
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| Location |
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| Condition/Symptoms/Medication |
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| Blood
Statistics |
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| Other
Illness/Family History |
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| RESULTS TABLE |
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| When reading
results, please note that when 'Total Response' does not equal 100%, then
that question was not answered by some participants. |
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| ABOUT YOU |
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Total Response |
| Gender |
Male |
Female |
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Ratio of Female to Male |
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2 |
18 |
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9.0:1 |
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10.0% |
90.0% |
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100.0% |
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| Age Range - Male |
0-29 |
30-49 |
50-69 |
70+ |
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Oldest Male |
Average Age |
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0 |
1 |
0 |
1 |
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85 |
67 |
% Male |
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0.0% |
5.0% |
0.0% |
5.0% |
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10.0% |
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| Age Range - Female |
0-29 |
30-49 |
50-69 |
70+ |
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Oldest Female |
Average Age |
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1 |
4 |
11 |
2 |
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81 |
57 |
% Female |
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5.0% |
20.0% |
55.0% |
10.0% |
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90.0% |
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| LOCATION |
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| Where in the World? |
USA |
UK |
Europe |
Australasia |
Asia |
Other |
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10 |
7 |
1 |
1 |
0 |
1 |
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50.0% |
35.0% |
5.0% |
5.0% |
0.0% |
5.0% |
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100.0% |
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| YOUR CONDITION |
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| Condition |
P.T. |
E.T. |
Thrombocytosis |
Thrombocythaemia |
Other |
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1 |
19 |
0 |
0 |
0 |
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5.0% |
95.0% |
0.0% |
0.0% |
0.0% |
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100.0% |
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| Date diagnosed |
Before 1980 |
1980-1989 |
1990 - 1999 |
2000 - 2009 |
2010+ |
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Longest Diagnosed |
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0 |
0 |
2 |
12 |
6 |
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15.7 |
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0.0% |
0.0% |
10.0% |
60.0% |
30.0% |
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100.0% |
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| Number of years
diagnosed |
<5 |
5 - 9 |
10 - 14 |
15 - 19 |
20 - 29 |
30 - 39 |
40+ |
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| (from diagnosis to
present date) |
9 |
8 |
2 |
1 |
0 |
0 |
0 |
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45.0% |
40.0% |
10.0% |
5.0% |
0.0% |
0.0% |
0.0% |
100.0% |
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| Primary symptoms |
Headaches |
Blood Clots |
Irregular Heartbeat |
Poor Circulation |
Other/Multiple |
None |
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6 |
0 |
0 |
1 |
7 |
6 |
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30.0% |
0.0% |
0.0% |
5.0% |
35.0% |
30.0% |
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100.0% |
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| Secondary symptoms |
Internal Organ Problems |
Fatigue |
Joint/Bone Pain |
Skin Problems |
Other/Multiple |
None |
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0 |
7 |
1 |
0 |
0 |
12 |
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0.0% |
35.0% |
5.0% |
0.0% |
0.0% |
60.0% |
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100.0% |
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| Current medication |
Aspirin only |
Hydroxyurea |
Anagrelide/Agrylin |
Other/Multiple |
None |
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8 |
8 |
1 |
1 |
2 |
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40.0% |
40.0% |
5.0% |
5.0% |
10.0% |
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100.0% |
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| Side effects - Current
medication |
Nausea/diarrhea |
Hypertension |
Rashes |
Heart Irregularities |
Fatigue/Pain |
Other/Multiple |
None |
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| (of those that take
medication) |
1 |
0 |
0 |
1 |
2 |
3 |
11 |
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5.6% |
0.0% |
0.0% |
5.6% |
11.1% |
16.7% |
61.1% |
100.0% |
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| Past medication |
Aspirin only |
Hydroxyurea |
Anagrelide/Agrylin |
Other/Multiple |
None |
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0 |
3 |
2 |
0 |
15 |
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0.0% |
15.0% |
10.0% |
0.0% |
75.0% |
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100.0% |
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| Past meds - Reason for
cessation |
Nausea/diarrhea |
Hypertension |
Rashes |
Heart Irregularities |
Fatigue/Pain |
Other/Multiple |
None |
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| (of those that took
medication) |
1 |
0 |
1 |
1 |
0 |
2 |
0 |
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20.0% |
0.0% |
20.0% |
20.0% |
0.0% |
40.0% |
0.0% |
100.0% |
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| YOUR BLOOD |
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| Blood group |
A |
B |
AB |
O |
Don't Know |
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2 |
5 |
1 |
5 |
7 |
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10.0% |
25.0% |
5.0% |
25.0% |
35.0% |
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100.0% |
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| Rhesus Factor |
Positive |
Negative |
Don't Know |
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8 |
4 |
8 |
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40.0% |
20.0% |
40.0% |
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100.0% |
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| Cholesterol |
Low ( <4 ) |
Normal ( 4.1 - 7.1 ) |
High ( >7.1 ) |
Don't Know |
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2 |
9 |
4 |
5 |
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10.0% |
45.0% |
20.0% |
25.0% |
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100.0% |
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| JAK2? |
Positive |
Negative |
Don't Know |
Not Answered |
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9 |
9 |
2 |
0 |
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45.0% |
45.0% |
10.0% |
0.0% |
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100.0% |
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| OTHER ILLNESS
/ FAMILY HISTORY |
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| Other illnesses |
Arthritis |
Thyroid Problems |
Asthma |
Diabetes |
Organ/Gland Problems |
Other/Multiple |
None |
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1 |
0 |
0 |
0 |
0 |
7 |
12 |
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5.0% |
0.0% |
0.0% |
0.0% |
0.0% |
35.0% |
60.0% |
100.0% |
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| On any other Medication? |
Yes |
No |
Not Answered |
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| (for other illness etc.) |
6 |
13 |
1 |
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30.0% |
65.0% |
5.0% |
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100.0% |
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| Allergies |
Penecillin |
Nut |
Hayfever/Seasonal |
Gluten |
Not Sure |
Other/Multiple |
None |
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0 |
0 |
2 |
2 |
1 |
4 |
11 |
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0.0% |
0.0% |
10.0% |
10.0% |
5.0% |
20.0% |
55.0% |
100.0% |
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| Family history |
Yes |
No |
Don't Know |
Not Answered |
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| of Heart/Blood problems |
13 |
4 |
3 |
0 |
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65.0% |
20.0% |
15.0% |
0.0% |
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100.0% |
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